So there are two things that may need a little clearing up.
She is NOT in remission. Remission will not be determined after a few months after all the chemo and transfusions are complete. It could take up to a year before remission is announced. The bone marrow sample that they took from her appeared to be leukemia free, but that unfortunately does not mean that she is in remission. (http://www.chemotherapy.com/treating_with_chemo/remission/goal.html)
She does want to have people come and visit. Please call or text her, so she can give you the address (503-341-3498) or email me and I will send it to you.
As always her charitable fund is still with FirstTech Credit Union. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214. Or through her website now with a PayPal account attached to it that you can donate to her via a credit or debit card. That site is here: http://jenenephilips.tumblr.com/
I have put all the past updates on her blog: http://neeners-updates.blogspot.com/. Please pass this on to anyone who may want to know about the progress she has gone through.
Thanks.
Sunday, March 27, 2011
Thursday, March 24, 2011
Update from March 24th
So she is home at her Mom's house since Monday 3/21, and has been feeling alright. She has been a bit shakey, but otherwise in good spirits.
She had a doctor's appointment yesterday to draw labs and check her vitals. It seems that her blood cell counts have been on the rise which is great. She has another appointment on the 31st which will tell her more about the future treatments and when she may be back in the hospital.
Her charitable fund is still with FirstTech Credit Union and is being facilitated by her mother Diane Anderson. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214.
She also has a website now with a PayPal account attached to it that you can donate to her via a credit or debit card. That site is here: http://jenenephilips.tumblr.com/
She wants to thank the folks who have been doing some smaller charitable work for her. She is very grateful for all the outpouring of love and support that she has been given.
She had a doctor's appointment yesterday to draw labs and check her vitals. It seems that her blood cell counts have been on the rise which is great. She has another appointment on the 31st which will tell her more about the future treatments and when she may be back in the hospital.
Her charitable fund is still with FirstTech Credit Union and is being facilitated by her mother Diane Anderson. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214.
She also has a website now with a PayPal account attached to it that you can donate to her via a credit or debit card. That site is here: http://jenenephilips.tumblr.com/
She wants to thank the folks who have been doing some smaller charitable work for her. She is very grateful for all the outpouring of love and support that she has been given.
Update from March 20th
So we received some GREAT NEWS today: SHE IS GOING HOME ON MONDAY 3/21/2011!!
Her white blood cell count has been trending up from 0.1 about a week ago, to 0.4 two days ago, to currently at 0.7 which is up enough where she can get released. They did a bone marrow biopsy on Thursday the 17th, and the sample that they got looked to be leukemia free.
She will be home for about 2 weeks, and then she will come back to the hospital for a third round of chemo for about 5 days, then return home again. She will then be back at OHSU at the end of April for her stem cell transplant. She will get a pre-chemo treatment for a few days before the procedure and will be in the hospital for about 3 weeks, then back home.
Hospital visits will be three times a week for a while, then two times a week then once a week, all to keep monitoring her cell count, get blood and platelet transfusions and be given chemo treatments, all as an outpatient. While at home we will monitor her temp and try to watch for infections or fevers.
Her charitable fund is with FirstTech Credit Union and is being facilitated by her mother Diane Anderson. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214.
A few of her friends have started to plan some fundraisers for her. As soon as dates and times are announced, I will make sure that you know when and where.
She also has a website now with a PayPal account attached to it that you can donate to her via a credit card. That site is here: http://jenenephilips.tumblr.com/
She wants to thank you for all the support, the visits, the gifts and the love you all have been giving to her while she has been in the hospital. She will be at her mom’s house after she leaves the hospital but will still be available to chat with via email, Facebook, text or calling.
If you wish to visit, please call or text Jenene so she can give you the address or directions. Her email address is jmphilips503@hotmail.com and her phone number is 503-341-3498. She does have a Skype profile (jenene.philips) or you can search for her via her email address.
Thank you.
Her white blood cell count has been trending up from 0.1 about a week ago, to 0.4 two days ago, to currently at 0.7 which is up enough where she can get released. They did a bone marrow biopsy on Thursday the 17th, and the sample that they got looked to be leukemia free.
She will be home for about 2 weeks, and then she will come back to the hospital for a third round of chemo for about 5 days, then return home again. She will then be back at OHSU at the end of April for her stem cell transplant. She will get a pre-chemo treatment for a few days before the procedure and will be in the hospital for about 3 weeks, then back home.
Hospital visits will be three times a week for a while, then two times a week then once a week, all to keep monitoring her cell count, get blood and platelet transfusions and be given chemo treatments, all as an outpatient. While at home we will monitor her temp and try to watch for infections or fevers.
Her charitable fund is with FirstTech Credit Union and is being facilitated by her mother Diane Anderson. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214.
A few of her friends have started to plan some fundraisers for her. As soon as dates and times are announced, I will make sure that you know when and where.
She also has a website now with a PayPal account attached to it that you can donate to her via a credit card. That site is here: http://jenenephilips.tumblr.com/
She wants to thank you for all the support, the visits, the gifts and the love you all have been giving to her while she has been in the hospital. She will be at her mom’s house after she leaves the hospital but will still be available to chat with via email, Facebook, text or calling.
If you wish to visit, please call or text Jenene so she can give you the address or directions. Her email address is jmphilips503@hotmail.com and her phone number is 503-341-3498. She does have a Skype profile (jenene.philips) or you can search for her via her email address.
Thank you.
Update from March 16th
She has been in pretty good spirits, she has been walking around the ward more and has been coloring in all the books that she has been given from everyone. They will do another bone marrow biopsy on the 17th or 18th to see about the progress of the chemo killing the leukemia cells.
Her Doctor has reported that they will be performing a stem cell harvest (http://en.wikipedia.org/wiki/Hematopoietic_stem_cell_transplantation) at about the end of April, it will be much like a blood transfusion and will be taken from her sister Charlene, who is a perfect match.
It depends on her counts and if she needs anymore chemotherapy treatments.
She still suffering a bit from the oral mucositis and esophagitis, that is still making it hard for her to eat and swallow liquids, but with the saline swish and a oral medicated mouthwash it has gotten better and she is eating more.
Her charitable fund is with FirstTech Credit Union and is being facilitated by her mother Diane Anderson. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214.
She also has a website now with a PayPal account attached to it that you can donate to her via a credit card. That site is here: http://jenenephilips.tumblr.com/
She is very grateful for all the well wishes and visitors.
Thank you,
Her Doctor has reported that they will be performing a stem cell harvest (http://en.wikipedia.org/wiki/Hematopoietic_stem_cell_transplantation) at about the end of April, it will be much like a blood transfusion and will be taken from her sister Charlene, who is a perfect match.
It depends on her counts and if she needs anymore chemotherapy treatments.
She still suffering a bit from the oral mucositis and esophagitis, that is still making it hard for her to eat and swallow liquids, but with the saline swish and a oral medicated mouthwash it has gotten better and she is eating more.
Her charitable fund is with FirstTech Credit Union and is being facilitated by her mother Diane Anderson. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214.
She also has a website now with a PayPal account attached to it that you can donate to her via a credit card. That site is here: http://jenenephilips.tumblr.com/
She is very grateful for all the well wishes and visitors.
Thank you,
Update from March 12th
She received her last chemo treatment for this round via her Lumbar Puncture yesterday at about noon. She should be getting the results about the LP in the next few days. Then they will do another biopsy on the 18th to see about the progress of the chemo killing the leukemia cells.
She has been mostly fatigued and sleeping a lot because of the meds. She has been suffering from oral mucositis and esophagitis, which is an inflammation of the tissue in the mouth and throat, that is making it very hard for her to eat and swallow liquids. She has been treating that with a saline swish and a oral medicated mouthwash that helps with the sores and inflammation.
Again, her charitable fund is with FirstTech Credit Union and is being facilitated by her mother Diane. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214. Or you may donate via credit or debit card at http://jenenephilips.tumblr.com/
She wants to thank all of those who have donated to her either in visits, gifts, money or just texts, calls, emails, Facebook posts and general great thoughts and concern for her. She is very blessed to have so many care for her.
She has been mostly fatigued and sleeping a lot because of the meds. She has been suffering from oral mucositis and esophagitis, which is an inflammation of the tissue in the mouth and throat, that is making it very hard for her to eat and swallow liquids. She has been treating that with a saline swish and a oral medicated mouthwash that helps with the sores and inflammation.
Again, her charitable fund is with FirstTech Credit Union and is being facilitated by her mother Diane. If you wish to donate to her, please make the checks out to Jenene Philips and you can send them to either 1392 SE 64th Court Hillsboro, OR 97123 or 3543 SE Belmont St, Portland OR 97214. Or you may donate via credit or debit card at http://jenenephilips.tumblr.com/
She wants to thank all of those who have donated to her either in visits, gifts, money or just texts, calls, emails, Facebook posts and general great thoughts and concern for her. She is very blessed to have so many care for her.
Another Update from March 8th
So we found out some really good news yesterday for Jenene’s treatment: her sister Charlene is a Bone Marrow match. More details about the procedure, when she will have it and recovery times will be coming soon, but for now that is some REALLY great news!
Nothing much else has changed on her chemotherapy; she began a new type of regiment that started Friday (3/4). She did a 22 hour round of Methotrexate (http://en.wikipedia.org/wiki/Methotrexate) until 6am Saturday morning. Now she is on Cytarabine (http://en.wikipedia.org/wiki/Cytarabine) every twelve hours for 1 more day. Then she will be getting the Metrotrexate via intrathecal on March 11th at noon.
We are again very happy with the match with Charlene. We also appreciate all the visits and texts, the calls, the emails (jmphilips503@hotmail.com) and just the warm wishes to her.
Thanks again
Nothing much else has changed on her chemotherapy; she began a new type of regiment that started Friday (3/4). She did a 22 hour round of Methotrexate (http://en.wikipedia.org/wiki/Methotrexate) until 6am Saturday morning. Now she is on Cytarabine (http://en.wikipedia.org/wiki/Cytarabine) every twelve hours for 1 more day. Then she will be getting the Metrotrexate via intrathecal on March 11th at noon.
We are again very happy with the match with Charlene. We also appreciate all the visits and texts, the calls, the emails (jmphilips503@hotmail.com) and just the warm wishes to her.
Thanks again
Update from March 8th
So we had some news that her Leukemia did not go into remission; as there were leukemia residuals in her Bone Marrow; and that she will need another round of chemo therapy. Because of the restart of chemo she will be here longer; until at least April 4th.
She is beginning a new type of regiment that started last night; Friday (3/4). She will be doing a 22 hour round of Methotrexate (http://en.wikipedia.org/wiki/Methotrexate) until 6am Saturday (3/5) morning. Then she will be starting Cytarabine (http://en.wikipedia.org/wiki/Cytarabine) every twelve hours for 2 days. Then she will be getting the Metrotrexate via intrathecal on March 11th at noon.
Her Doctor (Dr. Kovacsovics - http://www.ohsu.edu/xd/health/services/providers/kovacsov.cfm) has decided to stay on her case. She is determined to beat this and she is keeping her spirits up.
As we stated in the last update, we have started a Charitable Fund for at FirstTech Credit Union. You can make checks out to either her or the Jenene Philips and send it to her via two addresses: - 1392 SE 64th Court, Hillsboro, OR 97123Or - 3543 SE Belmont St, Portland OR 97214We will take them and deposit it into her fund.
Her Brother-In-Law Derek Bronson has set up a website with a PayPal account so that you can donate to her with a credit or debit card: http://jenenephilips.tumblr.com/
Keep visiting or sending her texts, calls or emails (jmphilips503@hotmail.com). She has really appreciated all the visitors.
Thanks
She is beginning a new type of regiment that started last night; Friday (3/4). She will be doing a 22 hour round of Methotrexate (http://en.wikipedia.org/wiki/Methotrexate) until 6am Saturday (3/5) morning. Then she will be starting Cytarabine (http://en.wikipedia.org/wiki/Cytarabine) every twelve hours for 2 days. Then she will be getting the Metrotrexate via intrathecal on March 11th at noon.
Her Doctor (Dr. Kovacsovics - http://www.ohsu.edu/xd/health/services/providers/kovacsov.cfm) has decided to stay on her case. She is determined to beat this and she is keeping her spirits up.
As we stated in the last update, we have started a Charitable Fund for at FirstTech Credit Union. You can make checks out to either her or the Jenene Philips and send it to her via two addresses: - 1392 SE 64th Court, Hillsboro, OR 97123Or - 3543 SE Belmont St, Portland OR 97214We will take them and deposit it into her fund.
Her Brother-In-Law Derek Bronson has set up a website with a PayPal account so that you can donate to her with a credit or debit card: http://jenenephilips.tumblr.com/
Keep visiting or sending her texts, calls or emails (jmphilips503@hotmail.com). She has really appreciated all the visitors.
Thanks
Wednesday, March 23, 2011
Update from March 4th
She was in really good spirits the last few days. She had been walking around the ward more, eating more and been in a generally great mood for a while now.
She had a Lumbar Puncture on Wednesday 3/2 and another Bone Marrow Biopsy Thursday 3/3. This will determine whether they will proceed with more of the chemo (HyperCVAD: http://en.wikipedia.org/wiki/HyperCVAD) and the Bone Marrow Transplant (http://en.wikipedia.org/wiki/Bone_marrow_transplant).
The transplant is the most optimum path to maximize her chances. We are still wanting to hear back to see if Charlene is a match for her.
We have started a Charitable account for her at FirstTech Credit Union, if you wish to donate to her for whatever reason you can send checks made out to Jenene Philips or just to her name and send it to her Mom’s house: 1392 SE 64th Court Hillsboro, OR 97123 or to my house at 3543 SE Belmont St, Portland OR 97214.
For information on Donating blood and other information on ALL, please see these links:
Leukemia and Lymphoma Society: http://www.lls.org/
American Cancer Society: http://www.cancer.org/
The American Red Cross: http://www.redcross.org/
Thanks again for all of your support, it is really appreciated.
She had a Lumbar Puncture on Wednesday 3/2 and another Bone Marrow Biopsy Thursday 3/3. This will determine whether they will proceed with more of the chemo (HyperCVAD: http://en.wikipedia.org/wiki/HyperCVAD) and the Bone Marrow Transplant (http://en.wikipedia.org/wiki/Bone_marrow_transplant).
The transplant is the most optimum path to maximize her chances. We are still wanting to hear back to see if Charlene is a match for her.
We have started a Charitable account for her at FirstTech Credit Union, if you wish to donate to her for whatever reason you can send checks made out to Jenene Philips or just to her name and send it to her Mom’s house: 1392 SE 64th Court Hillsboro, OR 97123 or to my house at 3543 SE Belmont St, Portland OR 97214.
For information on Donating blood and other information on ALL, please see these links:
Leukemia and Lymphoma Society: http://www.lls.org/
American Cancer Society: http://www.cancer.org/
The American Red Cross: http://www.redcross.org/
Thanks again for all of your support, it is really appreciated.
Update from February 24th
So it was a rough couple of days for Jenene. She had been suffering from a migraine since 2/23. She was treating it with meds along with pain meds and anti-inflammatory medicines.
She had her Lumbar Puncture procedure the morning of the 24th, and they said she did fine.
Her liver enzymes are slightly elevated but they are on the decline from yesterday when she had liver inflammation. Her ALT’s are normal and her ACT’s are elevated. She had a hepatitis C test to see if that was the cause, but it came back negative
She was sleeping all day with an IV fluid bag and a bunch of meds to fight off the migraine; which… seems to have helped her a lot as she has peaked up a lot and has even asked to something to eat. It is only goldfish crackers, but SHE IS EATING GOLDFISH CRACKERS!! And now thin mints (I was excited about this!).
Also, I had mentioned in one of my updates about Team In Training (www.teamintraining.org/); well I have signed up to run the Portland Marathon with Team In Training. I have to raise about $1,500 dollars to have the entry fee for the marathon taken care of, and the majority of the money raised will go the Leukemia and Lymphoma Society. If anyone is interested in signing up, they have a few more races and events that you can do, or even just to volunteer. Let me know. I will have a website up in a few days to help with my fundraising.
Thank You.
She had her Lumbar Puncture procedure the morning of the 24th, and they said she did fine.
Her liver enzymes are slightly elevated but they are on the decline from yesterday when she had liver inflammation. Her ALT’s are normal and her ACT’s are elevated. She had a hepatitis C test to see if that was the cause, but it came back negative
She was sleeping all day with an IV fluid bag and a bunch of meds to fight off the migraine; which… seems to have helped her a lot as she has peaked up a lot and has even asked to something to eat. It is only goldfish crackers, but SHE IS EATING GOLDFISH CRACKERS!! And now thin mints (I was excited about this!).
Also, I had mentioned in one of my updates about Team In Training (www.teamintraining.org/); well I have signed up to run the Portland Marathon with Team In Training. I have to raise about $1,500 dollars to have the entry fee for the marathon taken care of, and the majority of the money raised will go the Leukemia and Lymphoma Society. If anyone is interested in signing up, they have a few more races and events that you can do, or even just to volunteer. Let me know. I will have a website up in a few days to help with my fundraising.
Thank You.
Brief Update from February 18th and 19th
She was diagnosed with Acute Lymphocytic Leukemia (info: http://en.wikipedia.org/wiki/Acute_lymphoblastic_leukemia). Treatment will take about a month for treatment and recovery. Then she will be in an out-patient program for about 6 months.
She had her Bone Marrow Biopsy Saturday 2/19 (info: http://en.wikipedia.org/wiki/Bone_marrow_examination).
Her Chemotherapy regimen was HyperCVAD (info: http://en.wikipedia.org/wiki/HyperCVAD).
There was a platelets transfusion on Sunday 2/20, it went down to 19,000 from 27,000 (info: http://en.wikipedia.org/wiki/Platelet). When she was originally diagnosed, her platelet count was 7,000. A healthy person’s platelet count is 150,000.
She can have snacks; but there is a restriction on some foods; mostly raw items (info: http://www.acor.org/leukemia/neutro.html). Packaged foods are best, canned, she can eat her favorite Kraft Mac and Cheese.
Visiting:
YOU WILL NOT BE ABLE TO VISIT IF YOU ARE FEELING ILL AT ALL. You can not have any perfume or cologne on. No FLOWERS. But other gifts are welcome. Also gossip magazines, she loves those. Her personal email is jmphilips503@hotmail.com; and I know a lot of you are her friends on Facebook, so she will be checking those very, very often. Her cell is working and would like calls and texts, but the service is spotty.
If you have any more questions, we will be happy to answer them. She has gotten a ton of information about A.L.L. and the treatments.
For more information about Leukemia please see the following sites:
National Leukemia and Lymphoma Society: http://www.lls.org/hm_lls
American Cancer Society: http://www.cancer.org/
Please contact me at the email below for more information or contact Jenene, her email address is listed above.
If you feel so compelled, please donate blood or platelets, because when you do, you can help save lives. Also, if you wish to donate your time or money to any of the above organizations, it helps with the fight against cancer.
For those athletic and running types, you can also go to the following website to help with Team in Training: www.teamintraining.org/. They will help raise money for the Leukemia and Lymphoma Society and train you to do marathons, triathlons and other forms of races.
Thank you.
She had her Bone Marrow Biopsy Saturday 2/19 (info: http://en.wikipedia.org/wiki/Bone_marrow_examination).
Her Chemotherapy regimen was HyperCVAD (info: http://en.wikipedia.org/wiki/HyperCVAD).
There was a platelets transfusion on Sunday 2/20, it went down to 19,000 from 27,000 (info: http://en.wikipedia.org/wiki/Platelet). When she was originally diagnosed, her platelet count was 7,000. A healthy person’s platelet count is 150,000.
She can have snacks; but there is a restriction on some foods; mostly raw items (info: http://www.acor.org/leukemia/neutro.html). Packaged foods are best, canned, she can eat her favorite Kraft Mac and Cheese.
Visiting:
YOU WILL NOT BE ABLE TO VISIT IF YOU ARE FEELING ILL AT ALL. You can not have any perfume or cologne on. No FLOWERS. But other gifts are welcome. Also gossip magazines, she loves those. Her personal email is jmphilips503@hotmail.com; and I know a lot of you are her friends on Facebook, so she will be checking those very, very often. Her cell is working and would like calls and texts, but the service is spotty.
If you have any more questions, we will be happy to answer them. She has gotten a ton of information about A.L.L. and the treatments.
For more information about Leukemia please see the following sites:
National Leukemia and Lymphoma Society: http://www.lls.org/hm_lls
American Cancer Society: http://www.cancer.org/
Please contact me at the email below for more information or contact Jenene, her email address is listed above.
If you feel so compelled, please donate blood or platelets, because when you do, you can help save lives. Also, if you wish to donate your time or money to any of the above organizations, it helps with the fight against cancer.
For those athletic and running types, you can also go to the following website to help with Team in Training: www.teamintraining.org/. They will help raise money for the Leukemia and Lymphoma Society and train you to do marathons, triathlons and other forms of races.
Thank you.
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